Posted: Thu 2nd Dec 2021

Senedd votes to ensure Motor Neurone Disease sufferers home adaptations are fast-tracked

News and Info from Deeside, Flintshire, North Wales
This article is old - Published: Thursday, Dec 2nd, 2021

Motor neurone disease (MND) sufferers have welcomed the Senedd voting in support of introducing a fast-track and non-means tested process for home adaptations for those living with the disease in Wales. ‌​‌‌​​​‌‍‌​‌​‌‌‌​‍‌​​​‌​‌‌‍‌​​​‌‌​‌‍‌​​‌‌‌‌​‍‌​​‌‌‌​​‍‌​​‌​‌​​‍‌​‌‌‌​‌‌‍‌​​‌‌​‌​‍‌​​‌‌‌​​‍‌‌​​‌‌​‌‍‌‌​​‌‌​​

Today’s Senedd debate, which was introduced by the Welsh Conservatives and led by Peter Fox MS, saw politicians vote in support of wanting to finally end the current excessively drawn-out waiting system. ‌​‌‌​​​‌‍‌​‌​‌‌‌​‍‌​​​‌​‌‌‍‌​​​‌‌​‌‍‌​​‌‌‌‌​‍‌​​‌‌‌​​‍‌​​‌​‌​​‍‌​‌‌‌​‌‌‍‌​​‌‌​‌​‍‌​​‌‌‌​​‍‌‌​​‌‌​‌‍‌‌​​‌‌​​

Pat Morton, who has MND and lives in Caldicot, said: ‌​‌‌​​​‌‍‌​‌​‌‌‌​‍‌​​​‌​‌‌‍‌​​​‌‌​‌‍‌​​‌‌‌‌​‍‌​​‌‌‌​​‍‌​​‌​‌​​‍‌​‌‌‌​‌‌‍‌​​‌‌​‌​‍‌​​‌‌‌​​‍‌‌​​‌‌​‌‍‌‌​​‌‌​​

“This is absolutely terrific news for those, like me, who have MND. ‌​‌‌​​​‌‍‌​‌​‌‌‌​‍‌​​​‌​‌‌‍‌​​​‌‌​‌‍‌​​‌‌‌‌​‍‌​​‌‌‌​​‍‌​​‌​‌​​‍‌​‌‌‌​‌‌‍‌​​‌‌​‌​‍‌​​‌‌‌​​‍‌‌​​‌‌​‌‍‌‌​​‌‌​​

“We know that the disease rapidly affects the brain and spinal cord, meaning that the current process of getting your house adapted just takes too long. ‌​‌‌​​​‌‍‌​‌​‌‌‌​‍‌​​​‌​‌‌‍‌​​​‌‌​‌‍‌​​‌‌‌‌​‍‌​​‌‌‌​​‍‌​​‌​‌​​‍‌​‌‌‌​‌‌‍‌​​‌‌​‌​‍‌​​‌‌‌​​‍‌‌​​‌‌​‌‍‌‌​​‌‌​​

“I cannot stress enough just how welcomed today’s decision is.” ‌​‌‌​​​‌‍‌​‌​‌‌‌​‍‌​​​‌​‌‌‍‌​​​‌‌​‌‍‌​​‌‌‌‌​‍‌​​‌‌‌​​‍‌​​‌​‌​​‍‌​‌‌‌​‌‌‍‌​​‌‌​‌​‍‌​​‌‌‌​​‍‌‌​​‌‌​‌‍‌‌​​‌‌​​

 Welsh Conservative MS for Monmouth, Peter Fox, who is the Motor Neurone Disease Champion, said: ‌​‌‌​​​‌‍‌​‌​‌‌‌​‍‌​​​‌​‌‌‍‌​​​‌‌​‌‍‌​​‌‌‌‌​‍‌​​‌‌‌​​‍‌​​‌​‌​​‍‌​‌‌‌​‌‌‍‌​​‌‌​‌​‍‌​​‌‌‌​​‍‌‌​​‌‌​‌‍‌‌​​‌‌​​

“It’s shameful that people living with MND across Wales were becoming trapped in inaccessible homes because the process was too slow and prevented them from gaining the necessary support in time. ‌​‌‌​​​‌‍‌​‌​‌‌‌​‍‌​​​‌​‌‌‍‌​​​‌‌​‌‍‌​​‌‌‌‌​‍‌​​‌‌‌​​‍‌​​‌​‌​​‍‌​‌‌‌​‌‌‍‌​​‌‌​‌​‍‌​​‌‌‌​​‍‌‌​​‌‌​‌‍‌‌​​‌‌​​

“Thankfully, we’ve come a step closer to bringing this complex and unfair system to an end. ‌​‌‌​​​‌‍‌​‌​‌‌‌​‍‌​​​‌​‌‌‍‌​​​‌‌​‌‍‌​​‌‌‌‌​‍‌​​‌‌‌​​‍‌​​‌​‌​​‍‌​‌‌‌​‌‌‍‌​​‌‌​‌​‍‌​​‌‌‌​​‍‌‌​​‌‌​‌‍‌‌​​‌‌​​

“There is still other processes for us to take, but Wales can be proud that we’re close to ensuring those living with MND have the best quality of life possible.” ‌​‌‌​​​‌‍‌​‌​‌‌‌​‍‌​​​‌​‌‌‍‌​​​‌‌​‌‍‌​​‌‌‌‌​‍‌​​‌‌‌​​‍‌​​‌​‌​​‍‌​‌‌‌​‌‌‍‌​​‌‌​‌​‍‌​​‌‌‌​​‍‌‌​​‌‌​‌‍‌‌​​‌‌​​

 And Sian Guest, who is the Wales Policy and Public Affairs Manager for the Motor Neurone Disease Association Charity, added: ‌​‌‌​​​‌‍‌​‌​‌‌‌​‍‌​​​‌​‌‌‍‌​​​‌‌​‌‍‌​​‌‌‌‌​‍‌​​‌‌‌​​‍‌​​‌​‌​​‍‌​‌‌‌​‌‌‍‌​​‌‌​‌​‍‌​​‌‌‌​​‍‌‌​​‌‌​‌‍‌‌​​‌‌​​

“We warmly welcome today’s decision where we’re close to achieving our goal of ending a system that is complex, unjust and inequitable, frankly, its left people with MND in unsafe and inaccessible homes. ‌​‌‌​​​‌‍‌​‌​‌‌‌​‍‌​​​‌​‌‌‍‌​​​‌‌​‌‍‌​​‌‌‌‌​‍‌​​‌‌‌​​‍‌​​‌​‌​​‍‌​‌‌‌​‌‌‍‌​​‌‌​‌​‍‌​​‌‌‌​​‍‌‌​​‌‌​‌‍‌‌​​‌‌​​

“The rapid progression of the disease is particularly cruel, and that is why we desperately need a new fast-track and non-means tested process for home adaptations. ‌​‌‌​​​‌‍‌​‌​‌‌‌​‍‌​​​‌​‌‌‍‌​​​‌‌​‌‍‌​​‌‌‌‌​‍‌​​‌‌‌​​‍‌​​‌​‌​​‍‌​‌‌‌​‌‌‍‌​​‌‌​‌​‍‌​​‌‌‌​​‍‌‌​​‌‌​‌‍‌‌​​‌‌​​

“From everyone at the Motor Neurone Disease Association Charity, we thank all those who voted in support of this debate.” ‌​‌‌​​​‌‍‌​‌​‌‌‌​‍‌​​​‌​‌‌‍‌​​​‌‌​‌‍‌​​‌‌‌‌​‍‌​​‌‌‌​​‍‌​​‌​‌​​‍‌​‌‌‌​‌‌‍‌​​‌‌​‌​‍‌​​‌‌‌​​‍‌‌​​‌‌​‌‍‌‌​​‌‌​​

  ‌​‌‌​​​‌‍‌​‌​‌‌‌​‍‌​​​‌​‌‌‍‌​​​‌‌​‌‍‌​​‌‌‌‌​‍‌​​‌‌‌​​‍‌​​‌​‌​​‍‌​‌‌‌​‌‌‍‌​​‌‌​‌​‍‌​​‌‌‌​​‍‌‌​​‌‌​‌‍‌‌​​‌‌​​

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