Children to have access to epilepsy drug in Wales

An epilepsy drug has been approved to treat children suffering from seizures on the NHS in Wales by the All Wales Medicine Strategy Group (AMWSG).

Epilepsy is a disorder characterised by seizures which are due to abnormal electrical activity in the brain.

Seizures can vary from the brief lapses of attention or muscle jerks, to severe and prolonged convulsions such as violent and involuntary muscle contractions. Seizures can also vary in frequency, from less than one per year to several per day.

Children aged between 4 and 15 who have this condition will have access to lacosamide (Vimpat®) as adjunctive therapy in the treatment of partial-onset seizures, even if the partial seizure spreads across the brain.

In Wales, paediatric epilepsy is the most common neurological disorder, affecting about 0.7% of all children. Around 10-29 per cent of paediatric epilepsy patients find that currently available anti-epileptic drugs do not control their seizures sufficiently, highlighting the need for new treatment options.

A New Treatment Fund for Wales was announced by the Health Secretary, Vaughan Gething last year, making £80m available to speed up access to the very latest medicines recommended by the National Institute of Health and Care Excellence (NICE) and AMWSG.

Under the new system, all health boards in Wales are required to make a NICE or AWMSG recommended medicine available no later than two months from the date the guidance is published, shortening the maximum amount of time before which a health board must make a treatment available by a third.

Health Secretary Vaughan Gething said:

“This is a great example of the New Treatment Fund working for epilepsy patients and their families in Wales. This can be a debilitating and distressing condition. 

“The substantial investment that we have made in NHS Wales demonstrates our commitment to ensuring that patients receive the latest recommended treatments quickly, no matter where they live in Wales.

“I look forward to seeing the fund continuing to promptly deliver the latest, innovative medicines to patients who need them, making a real difference to their lives.”

What to do if a child has an epileptic seizure.

Today is ‘Purple Day’ for epilepsy awareness.

March 26 is ‘Purple Day’ – a day dedicated to epilepsy awareness and to encourage people with epilepsy to open up about their condition.

For Purple Day this year, Epilepsy Action is focusing on the life-changing work of the Epilepsy Action Helpline.

As you can see from Rob’s story, the Helpline gives people the support they need to live better with epilepsy.

Now we want to open the Helpline for longer, so even more people can get that vital help.

Your support on Purple Day will mean we can be there on evenings and weekends. It means we can be there for more people with nowhere else to turn. Just like we’ve been there for Rob.

Your support means more people will be able to take control of their epilepsy, however it affects their life.